The ArChristmas Fund which is a charity that distributes gifts during the holiday season is holding its annual fund raiser with a goal of $50,000 this year.  The fund is extraordinary in the way that most of the recipients of its proceeds aren’t asking for presents in the traditional sense, rather clothes and basic toiletry items.

The ArChristmas Fund receives funding from an umbrella fund which distributes every penny donated to six local Alamance County, NC charities (including ArChristmas Fund):

For further info including donation information: For Christmas, many with disabilities ask for basics



A recent report conducted by the March of Dimes and Sutter Health concludes that California is ranked 9th in the nation for premature births due to issues like: unnecessary cesarean sections, smoking while pregnant or lack of insurance. While I’m not sure what lack of insurance has to do with premature births…

In its sixth annual “Prematurity Awareness” report, any births prior to 37 weeks (a little more than 9 months) would be considered premature. The report also says that premature births are also the leading causes of death and disabilities. California ranked 9th on the report with 10.7% premature, while Alabama ranked 50th with 16.7% premature; not a single state in the union received an “A.” The only state to receive a “B” was Vermont.

The March of Dimes is asking all Americans to sign a petition titled “Petition for Preemies” which is aimed at increasing Federal funding for prematurity related and data collection of births. This funding would help determine the causes of premature births, test for strategies/prevention, and ultimately better track and define the problems of premature birth.

You can read different version of this story at:



The Epilepsy Foundation is running a petition to get increased funding under the Obama administration and to stop discrimination and improve the lives of three million Americans living with epilepsy.  The Foundation also cites that about 200,000 new cases are diagnosed on a yearly basis and should be cause for concern.

Aside from the provision to electronically sign the petition on the main page of their site, they also have petition sheets that can be printed and mailed in to the foundation after being signed by the allotted number of people.



The AAPD is calling for action to force investigations into the accessibility of Florida’s polling places. The Secretary of State and Governor are refusing federal investigators access to the polling places. Of 30 randomly selected states in the union, Florida is the only one refusing to participate in the accessibility survey.

The survey, designed around three objectives, is to measure accessibility of polling places for wheelchairs, get objective data on voting machines, testing polling place workers knowledge of the voting machines, and training people to assist senior citizens and people with disabilities when voting.

“In a state with such a high senior citizen population and high population of people with disabilities, it’s outrageous that the Secretary of State refuses to let people in to measure accessibility. What’s he got to hide?” said Jim Dickson, Vice President for Government Affairs at AAPD.

The AAPD also wishes to commend many other state representatives for initiating the survey and Senator Bill Nelson (D-FL) for calling Governor Crist to allow federal inspectors into the polling places. Read Senator Nelson’s letter to Charlie Crist here: Florida Senator Bill Nelson’s Letter to Governor Charlie Crist

While not stated in the article on the AAPD website, this goes directly against the Help America Vote Act of 2002, which requires accessibility (or alternatives) of all polling places and voting machines.



While no actual budget deal or floor votes on the State budget have been announced, there are rumors and reports that the Legislature is considering agreeing to the Governor’s proposals that call for cutting the federal cost of living money due January 1, 2009 for people receiving SSI/SSP (Supplemental Security Income/State Supplemental Payment) or other cuts to that program.

There are rumors and reports of other major cuts to health and human services being considered that impact hundreds of thousands of children and adults with disabilities (including developmental), mental health needs, seniors, low income families.

Urge continuation of the Medi-Cal Working Disabled Program and restoration of Medi-Cal provider rate cuts.

A budget for California need not harm its own people to balance it. We are one community - let’s stand and act like one with unified action opposing further cuts that harm all of California.

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From the Disability Rights Education and Defense Fund (DREDF)

and other disability rights attorneys and advocates

Department of Justice Proposes Vast Changes in ADA Regulations

YOUR COMMENTS URGENTLY NEEDED!

Please forward this alert widely

The deadline for comments is August 18, 2008.

TO SEE DRAFT COMMENTS, visit http://www.dredf.org/DOJ_NPRM

(more…)



Time is of the essence.

  1. Please cut and paste the email note below, then…
  2. Email it to the Republican and Democratic Members of the Senate Appropriations Committee with the Cost Study included.

This is separate from the letter of support you have sent or may be sending to your Senator.

We welcome all GAPS and CWG participants to help us get the message across that work pays for the government and for people with disabilities.

Click here for your California State Legislators and Districts

California Senate Appropriations Committee:

Torlakson (Chair), Cox (Vice Chair), Aanestad, Ashburn, Cedillo, Corbett, Dutton, Florez, Kuehl, Oropeza, Ridley-Thomas, Runner, Simitian, Wyland and Yee.

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July 3, 2008

GAPS Participants:

AB 851 was sent to the suspense file by the Senate Appropriations Committee on June 30, 2008. We need to continue to gather new individual and organizational support to move it to a vote. Over the long weekend please take the time to send this to your colleagues, board members, networks, and family members!

Help get AB 851 out of the CA Senate Appropriations Committee “Suspense File!”

(more…)



Medi-Cal’s 250% Working Disabled Program allows workers with a disability to buy into Medi-Cal health care services by paying an affordable monthly premium. The program took effect in 2000. Applicants and those enrolled can be earning up to $53,000 a year and keep full scope Medi-Cal including In-Home Supportive Services (IHSS). An applicant does NOT need to be on SSI or SSDI to access this Medi-Cal program for workers.

AB 851 improves & makes the Medi-Cal 250% Working Disabled Program permanent.

AB 851 can relieve the state from larger financial burdens by increasing employment rates for people with disabilities. Make sure to ASK your Senator to vote for this very important employment bill!

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REQUEST FOR IMMEDIATE ASSISTANCE to Avoid Federal Narrowing of Class Action Rights of People with Developmental Disabilities and Other Issues - Comments need to be Filed by June 9, 2008.

New rules could create barriers for Protection and Advocacy’s ability to represent people with Developmental Disabilities and distract from meaningful advocacy work.

The federal Administration on Developmental Disabilities (ADD) issued a Notice of Proposed Rulemaking for the Developmental Disabilities Act of 2000. There are issues raised in this proposed rule that could have an extremely negative impact on the ability of the three DD entities - State Councils on Developmental Disabilities, Protection and Advocacy programs, and University Centers for Excellence in Developmental Disabilities - to carry out their statutorily mandated roles. In addition, ADD requests comments on the issues of 1) class actions and 2) educating policy makers and may base further regulations on these comments.

Send your letter to ADD by June 9th (electronic submission is possible) in order to help us ward off any negative regulations. It is important that ADD receive as many comments as possible from advocates and organizations who collaborate with community collaborators to assure that negative implications are not enshrined in Federal regulations.

Electronically via the Internet at: http://www.regulations.acf.hhs.gov. Electronic comments must include the full name, address, and organizational affiliation (if any) of the commenter.

Note: Once clicking on the above link, you must then click on Comment on a Regulation.

(more…)



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